I met a man at an amyloidosis patient conference last spring — I’ll call him Marcus —...
Janet Ellis
Patient advocate and neuropathy support group leader with over a decade of personal experience managing peripheral neuropathy. I started Neuropathy Resource to create the resource I wish had existed when I was first diagnosed — honest, accessible information written by someone who actually lives with this condition. Everything here comes from personal experience, published medical research, and conversations with healthcare providers. I am not a medical professional — I'm someone who has walked this road and wants to help others navigate it.
Nearly every treatment for hereditary transthyretin amyloidosis works the same way at a structural level. You take...
It is 9:40 on a Sunday night and you are sitting in a plastic chair with a...
A woman I met at a support group last year — I’ll call her Ellen — spent...
Two things reliably go wrong for people with neuropathy in a hospital, and neither of them is...
The first time someone in our community forwarded me a headline about “ATX01,” I had to read...
Somebody in our support group emailed me last week with a subject line that read, in all...
Go and sit on the edge of your bed, feet flat on the floor, and look down....
The first time I sat in a podiatrist’s office, I was clutching a shoebox like it held...
Two in the morning. You are awake because your bladder decided you were, and you are already...