Somewhere out there right now, there’s a person sitting in a neurologist’s office being told, gently, that...
Articles
Minute four is fine. Minute twelve is manageable. Somewhere around minute twenty-two, the burning in your feet...
A guy I’ll call Ray came up to me after a talk I gave last winter. Mid-60s,...
A woman in my Tuesday-night support group — I’ll call her Karen — spent nearly nine years...
I met a man at an amyloidosis patient conference last spring — I’ll call him Marcus —...
Nearly every treatment for hereditary transthyretin amyloidosis works the same way at a structural level. You take...
It is 9:40 on a Sunday night and you are sitting in a plastic chair with a...
A woman I met at a support group last year — I’ll call her Ellen — spent...
Two things reliably go wrong for people with neuropathy in a hospital, and neither of them is...
The first time someone in our community forwarded me a headline about “ATX01,” I had to read...